Within your advocacy, what term(s) resonate with you most?
How do you typically refer to your community leadership, and/or what terms resonate with you most?
Health Advoacay?
Patient Advocate?
Patient/Caregiver Health Leadership?
Patient/Caregiver Activist?
Other?
My work is in online support of the Multiplesclerosis.net community, and I refer to myself as a Team Member.
Because of my relationship with legislators and professionals in healthcare, I will say "I am an NCD health here to discuss (name the chronic condition and/or issue). I have been living with type 2 diabetes since 1996...". This allows me to position what I am there for, and let it be known, life has been a challenge for about half of my life. It has worked.
I typically refer to my community leadership as sharing my health journey. I don't mind the term health advocate or health advocacy but I see what I do as more than just advocating.
I say patient advocate/patient advocacy 🦋
